Cindy's Blog

My home on the web since 1995

recent posts

Category: Family and Friends

  • Barry Presented Unsung Hero Award

    On Friday, March 4, Linda Barry, special education teacher at Grafton High School, received the 2011 Unsung Hero award presented by the Central Massachusetts Department of Developmental Disabilities Citizen’s Advisory Board. The award was presented at the Annual Citizen Advisory Board’s Legislative Breakfast held at Clark University in Worcester. Mrs. Barry was nominated for the…

  • Another Tracheostomy in Our Future

    On Friday, we removed Anthony’s PICC line and discontinued the TPN. That’s the good news. Unfortunately, the same day he spiked a fever and became congested. On Saturday, it became clear that we had a very sick boy on our hands. Because of his congestion and fever, he was started on antibiotics via his J-tube.…

  • More Complications

    I left off last Tuesday when we were waiting for discharge from the hospital. We were literally discharged and on our way out the door when the nurse decided to give Anthony a dose of Flagyl (an antibiotic drug), so that he would not miss a dose. The Flagyl was very thick, sticky and gritty…

  • 50cc/hour!

    Anthony reached his goal of 50cc/hour via his J-tube at 7:00am this morning! So far he is tolerating it well. So, discharge is planned for this afternoon. We will continue with the TPN at home, until we are sure he will do OK with the J-tube feedings. The resident just came in and removed Anthony’s…

  • Tests, Tests and More Tests

    We left off with Anthony being discharged Tuesday, February 8th with a goal of gradually increasing his J-tube feedings to 50cc/hour. This was not going well. He was barely tolerating 20cc an hour. On Wednesday night I had to shut off the feedings due to retching and gagging. Things were just not moving properly in…